CARE Registry

Closing the Gap in Medical Research Participation
Increasing Asian American Representation

Learn more about CARE: https://careregistry.ucsf.edu/about

Did you know? Asian Americans and Pacific Islanders (AAAPI) make up 6.2% of the U.S. population but participate in less than 1% of NIH clinical research. This means that healthcare needs unique to Asian American genetics, culture, and experiences may be neglected due to a lack of data and representation.

The Collaborative Approach for Asian Americans, Native Hawaiians and Pacific Islanders (AANHPI) Research and Education (CARE), established by UCSF (University of California, San Francisco), aims to address the gap in research participation among AANHPI communities by connecting eligible adults with future research opportunities.

CARE participants may participate in various research projects, including studies on Alzheimer’s disease, aging, caregiving, and other related health issues in Asian American, Native Hawaiian, and Pacific Islander communities.

The registry takes only 10–15 minutes to complete and is available in 9 different languages, including English, Simplified Chinese, and Traditional Chinese. Your information will be kept confidential in accordance with IRB regulations and used only for medical and health research.

CARE gives AANHPI adults the opportunity to shape medical research that affects the health of our communities!

Are you eligible?

  • Asian, Asian American, Native Hawaiian, and/or Pacific Islander
  • 18 years old or older
  • Able to read or speak one of the following languages: English, Cantonese, Mandarin, Hindi, Japanese, Korean, Samoan, Tagalog, or Vietnamese
  • Reside in the United States (US) or US Associated Pacific Islands (USAPI)
  • Willing to be contacted to participate in health research
ENROLL IN CARE TODAY!

How does CARE work?

Two parallel paths lead to matching. Participant path: complete a brief survey to enroll in CARE, then your information is stored in CARE’s secure HIPAA-compliant database. Researcher path: submit a referral request application to CARE, then obtain approval from an Institutional Review Board. Both paths lead to CARE matching participants with researchers. You decide whether to participate and there is no cost to you.

You complete a brief survey to enroll in CARE

Your information is saved in CARE’s secure database*

Researchers submit an application to CARE

Researchers get approval to use CARE data from their Institutional Review Board**

* CARE’s database is HIPAA compliant, meaning it follows security measures to store protected health information. ** An Institutional Review Board (IRB) is made up of qualified individuals who carefully review research involving human participants. They ensure that these studies are ethical, follow all laws, and protect participants’ rights and safety.